No experience needed — just a voice.
If you or your child lives with a rare disease and you'd like to connect with our community — in the US or Morocco — we'd love to hear from you.
Interested in joining an iCAN KIDS chapter, or curious what it's like to advocate on Capitol Hill? Reach out. No experience needed — just a voice.
Project RARE welcomes partnership inquiries from patient organizations, hospitals, researchers, and advocacy groups.
Contact
📧 Email: info@projectrare.org
📷 Instagram: @project.rare
📍 Washington, DC
We typically respond within a few days. For partnership inquiries, please include your organization's name and a brief description of your work.