Advocacy is stronger together. We collaborate with patient organizations in the United States and internationally.
Our Network
Project RARE's youth chapters operate as part of iCAN's global network, connecting young advisors to researchers, hospitals, and industry shaping pediatric medicine.
Through the EveryLife Foundation's Rare Disease Legislative Advocates program, we participate in national policy advocacy, including annual Hill Days in Washington, DC.
International partnership announcements coming soon.
Partner With Us
Project RARE welcomes partnership inquiries from patient organizations, hospitals, researchers, and advocacy groups — in the United States, Morocco, and beyond.